The National Alopecia Areata Foundation

by Staff Writer

The National Alopecia Areata Foundation (NAAF) has one thing on its mind: hair loss. The NAAF focuses exclusively on one type of hair loss, alopecia areata, and provides various support for both sufferers of alopecia areata and those who are seeking to cure and treat the disease.

What is Alopecia Areata?

Alopecia Areata is believed to be an autoimmune disease in which a person’s immune system attacks hair follicles, causing hair loss. Two in a hundred people suffer from alopecia areata and it can affect anyone – men, women, and children are all susceptible. Hair loss is sudden and can occur literally overnight, appearing in oval, circular or irregularly shaped bald patches on the scalp.

You can learn more about presentation, diagnosis, and treatment at the American Hair Loss Association’s Alopecia Areata page.

What is the NAAF?

The NAAF is a non-profit organization that is led by an all-volunteer board of directors and a scientific advisory council. The NAAF was founded in 1981 and is the biggest and most influential foundation that works on behalf of researchers and hair loss sufferers who deal with alopecia areata.

The organization’s mission is clearly stated on their website, which you can visit at www.naaf.org:

The National Alopecia Areata Foundation (NAAF) supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. The mission is accomplished by:

• Funding research and research workshops that add to the scientific knowledge about alopecia areata, its causes, and different treatments.
• Providing local support and education for people with alopecia areata and their families.
• Informing the public about alopecia areata.
• Advocating the concerns of people affected alopecia areata.
• Creating and distributing educational materials to health professionals as well as those affected, so that all may better understand alopecia areata.

Support

The NAAF has established support groups all across the globe, as well as an extensive support network. The support is provided to individuals with alopecia areata as well as their families and friends. You can learn more by visiting the NAAF’s support page.

The extensive support network offers a pen pal program, online message boards, telephone contacts, and several other ways that people who are dealing with alopecia areata can connect, share information, and provide support. The NAAF website has a network page you can visit to get more information about joining a network.

Getting Help

Dealing with alopecia areata is trying and can be quite devastating. The NAAF works toward finding a cure and viable treatments while providing much-needed support for those who have been affected by this disease. If you or someone you love is suffering from alopecia areata, get in touch with the NAAF and find out how they can help you.

Also remember to check with The American Hair Loss Association before you purchase any product or treatment to treat your hair loss.

{ 10 comments… read them below or add one }

Miriam Wuilleumier February 23, 2010 at 3:11 pm

Has ANY positive result of complete hair recovering from alopecia areata universalis ever occured ? If so, would you please, direct me to the proper research/method/professional ?
Best regards

yolanda March 9, 2010 at 10:09 am

CAN ALOPECIA ARETA LEAD TO CANCER???????

Linda March 11, 2010 at 12:29 pm

My aunt is suffering from alopecia due to medications that are not an option to discontinue. She is in need of a wig but unfortunately we cannot afford it. Do you know of an oganization that donates or sells at a small fee a wig she can be proud of. Human hair wig would be fantastic, but beggars can’t be choosers. Any assistance is GREATLY appreciated.

govind August 17, 2010 at 4:24 am

im 30 years im suffureing from alopecia areata from 5 years can i go for hair transplant

LAURA28 October 7, 2010 at 5:59 am

Heloo, my name is Laura, I am 28 years old, and I have Alopecia Areata for 2 months.
I am taking a treatment ( pantovigar, miss vitaal and gair hrow spray 2%), I hade only one but now I have 2 ( possible 3, I just sow that I lose hair again, from another place on my scalp). The treatment did work, on my first area is growing hair, a lot of small hairs. Unfortunately now I have more areas. I try to be strong not to cry, but is hard. Hope you all will heal :)

Eduardo November 8, 2010 at 11:45 am

I have been in universalis for about 2 years, I stopped seeing dermatologists or any other doctor for my condition. I am not taking any medications for it but my hair on my face has started growing back. Do you think that this could be the end phase of this universalis episode and have you had any other cases like this where hair starts to come back without any help from medication? Just interested in seeing where I stand.
Thanks,
Eduard

Iris March 5, 2011 at 8:42 pm

I have a large area in the frontal area of my scalp that is almost totally bald. I, too, am on a very fixed income and would like to know of an organization which might help with a hairpiece or any kind of help.

Tammy March 20, 2011 at 12:53 pm

I read that there was a pill being tested in the regrowth of hair for alopecia areata? If this is true I am very interested in any information I can get on this research and testing. I have been diagnosed with alopecia areata for eight years now, and to be honest I want my hair back. Please send any information possible via email. Thank you, Tammy S.

ashlea March 24, 2011 at 5:12 pm

I am a young 22 year old mother of one, my most precious gift from god. I hav been chronically ill for nine years. Prior to this I had always been healthy active never smoked or drank. After the onset of mononucleosis at age 13, I have never been the same. My immune system has gone into overdrive and each year I accumulate more dibilitating symptoms and autimmune diseases. I have medulary sponge kidney disease that presented twenty years early and i suffer from dibilitating kidney stones 7 to 10 a week, having to be hospitalized 3 times a month for stones to large to pass. With each i experience nausea, vomiting, fever and severe pain. I have tried everything possible changing my diet, taking supplements, drinking more fluids, my neprhologist has tried everything. I’m in constant pain from kidney colic. I also suffer from cryptogenic autoimmune hepatitis, my I experience liver cholic and horrible liver and spleen pain attacked and destroyed my gallbladder and had to be removed. I”v experienced many upper and lowere GI problem, nuerologcal symptoms such as tingling in my arms and legs and dropping things or falling. At one point I was having mini siezures. My pupils also stay very dialated whether I am in the dark or the sun and are unresponsive to light. I also experience rhematoid problems, my joints swell and hurt unbearably. I also suffer from pain in my bones, nerves, and muscles. My lymph nodes and spleen are chronically enlarged. I’ve had horrible skin problems horrific rashes and i have been suffering with alopecia areata ophiasis since highschool along with thining eye lashes, eye brows, arm, and leg hair. I also suffer from chronic fatigue syndrome, nueropathic pain, and chronic pain syndrome. I suffer from asthma that has gotten very severe after the onset nine years ago. I also suffer from chronic migrains, frequent UTIs. Whenever anyone gets sick it puts me in the hospital. Over the years I’ve lost count and rely solely on my medical hournaling to be more detailed about symptoms ilnesses n when the occur. I also developed postural orthostatic tachyhcardia syndrome as well and high blood pressure, abnormal for me. Oddly enough during my pregnancy although i was high risk i gained my weight back plus some and had a healthy pregnancy up until the end when my son wasnt measuring a month prior to his birth. After breast feeding for three months my symptoms starting to come back with avengence. The reason i am writing this comment is because I am desperate. Three weeks ago I went to the er not feeling right, and apparently I was hypoxic and went into congestive heart failure because of the stress from my immune system attacking my body and other contributing factors with drs not seeing the signs I had to be inabated and flight for lifed to KUMED, spending six days in ICU on a breathing machine. Another 3 in the hospital after that with appts scheduled every week for the next couple months. I suffer from many dibilitating conditions altering my life in many ways and I’m struggling to take control. I’v been to the MAYO Clinic in Minnesota and to specialists all over all of whom can tell me its an unidentifiable systemic connective tissue autoiimune disease but they dont know what. All they know is the autoimmune diseases it is causing and that this mono virus sent my body into over drive. I suffer daily nausea, vomiting, and severe pain. If anyone out there is experiencing the same symptoms or knows any informations or contacts that might be able to help me Please email me at the address above. We’ve been looking for years, every day is a struggle, I maintain hope someone out there might be able to help me get my life back.

sunu August 17, 2011 at 3:06 am

am also suffering from alopecia areta since 2 years .now my hair 70 percent gone i tried homeopathy,alopathy and now using Ayurveda oil.can u give suggestion for best tretment for alopecia areta?

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