Comments on: The National Alopecia Areata Foundation

By: sunu

sunu — Wed, 17 Aug 2011 10:06:17 +0000

am also suffering from alopecia areta since 2 years .now my hair 70 percent gone i tried homeopathy,alopathy and now using Ayurveda oil.can u give suggestion for best tretment for alopecia areta?

By: ashlea

ashlea — Fri, 25 Mar 2011 00:12:52 +0000

I am a young 22 year old mother of one, my most precious gift from god. I hav been chronically ill for nine years. Prior to this I had always been healthy active never smoked or drank. After the onset of mononucleosis at age 13, I have never been the same. My immune system has gone into overdrive and each year I accumulate more dibilitating symptoms and autimmune diseases. I have medulary sponge kidney disease that presented twenty years early and i suffer from dibilitating kidney stones 7 to 10 a week, having to be hospitalized 3 times a month for stones to large to pass. With each i experience nausea, vomiting, fever and severe pain. I have tried everything possible changing my diet, taking supplements, drinking more fluids, my neprhologist has tried everything. I’m in constant pain from kidney colic. I also suffer from cryptogenic autoimmune hepatitis, my I experience liver cholic and horrible liver and spleen pain attacked and destroyed my gallbladder and had to be removed. I”v experienced many upper and lowere GI problem, nuerologcal symptoms such as tingling in my arms and legs and dropping things or falling. At one point I was having mini siezures. My pupils also stay very dialated whether I am in the dark or the sun and are unresponsive to light. I also experience rhematoid problems, my joints swell and hurt unbearably. I also suffer from pain in my bones, nerves, and muscles. My lymph nodes and spleen are chronically enlarged. I’ve had horrible skin problems horrific rashes and i have been suffering with alopecia areata ophiasis since highschool along with thining eye lashes, eye brows, arm, and leg hair. I also suffer from chronic fatigue syndrome, nueropathic pain, and chronic pain syndrome. I suffer from asthma that has gotten very severe after the onset nine years ago. I also suffer from chronic migrains, frequent UTIs. Whenever anyone gets sick it puts me in the hospital. Over the years I’ve lost count and rely solely on my medical hournaling to be more detailed about symptoms ilnesses n when the occur. I also developed postural orthostatic tachyhcardia syndrome as well and high blood pressure, abnormal for me. Oddly enough during my pregnancy although i was high risk i gained my weight back plus some and had a healthy pregnancy up until the end when my son wasnt measuring a month prior to his birth. After breast feeding for three months my symptoms starting to come back with avengence. The reason i am writing this comment is because I am desperate. Three weeks ago I went to the er not feeling right, and apparently I was hypoxic and went into congestive heart failure because of the stress from my immune system attacking my body and other contributing factors with drs not seeing the signs I had to be inabated and flight for lifed to KUMED, spending six days in ICU on a breathing machine. Another 3 in the hospital after that with appts scheduled every week for the next couple months. I suffer from many dibilitating conditions altering my life in many ways and I’m struggling to take control. I’v been to the MAYO Clinic in Minnesota and to specialists all over all of whom can tell me its an unidentifiable systemic connective tissue autoiimune disease but they dont know what. All they know is the autoimmune diseases it is causing and that this mono virus sent my body into over drive. I suffer daily nausea, vomiting, and severe pain. If anyone out there is experiencing the same symptoms or knows any informations or contacts that might be able to help me Please email me at the address above. We’ve been looking for years, every day is a struggle, I maintain hope someone out there might be able to help me get my life back.

By: Tammy

Tammy — Sun, 20 Mar 2011 19:53:12 +0000

I read that there was a pill being tested in the regrowth of hair for alopecia areata? If this is true I am very interested in any information I can get on this research and testing. I have been diagnosed with alopecia areata for eight years now, and to be honest I want my hair back. Please send any information possible via email. Thank you, Tammy S.

By: Iris

Iris — Sun, 06 Mar 2011 03:42:28 +0000

I have a large area in the frontal area of my scalp that is almost totally bald. I, too, am on a very fixed income and would like to know of an organization which might help with a hairpiece or any kind of help.

By: Eduardo

Eduardo — Mon, 08 Nov 2010 18:45:30 +0000

I have been in universalis for about 2 years, I stopped seeing dermatologists or any other doctor for my condition. I am not taking any medications for it but my hair on my face has started growing back. Do you think that this could be the end phase of this universalis episode and have you had any other cases like this where hair starts to come back without any help from medication? Just interested in seeing where I stand.
Thanks,
Eduard

By: LAURA28

LAURA28 — Thu, 07 Oct 2010 12:59:15 +0000

Heloo, my name is Laura, I am 28 years old, and I have Alopecia Areata for 2 months.
I am taking a treatment ( pantovigar, miss vitaal and gair hrow spray 2%), I hade only one but now I have 2 ( possible 3, I just sow that I lose hair again, from another place on my scalp). The treatment did work, on my first area is growing hair, a lot of small hairs. Unfortunately now I have more areas. I try to be strong not to cry, but is hard. Hope you all will heal

By: govind

govind — Tue, 17 Aug 2010 11:24:00 +0000

im 30 years im suffureing from alopecia areata from 5 years can i go for hair transplant

By: Linda

Linda — Thu, 11 Mar 2010 19:29:33 +0000

My aunt is suffering from alopecia due to medications that are not an option to discontinue. She is in need of a wig but unfortunately we cannot afford it. Do you know of an oganization that donates or sells at a small fee a wig she can be proud of. Human hair wig would be fantastic, but beggars can’t be choosers. Any assistance is GREATLY appreciated.

By: yolanda

yolanda — Tue, 09 Mar 2010 17:09:49 +0000

CAN ALOPECIA ARETA LEAD TO CANCER???????

By: Miriam Wuilleumier

Miriam Wuilleumier — Tue, 23 Feb 2010 22:11:53 +0000

Has ANY positive result of complete hair recovering from alopecia areata universalis ever occured ? If so, would you please, direct me to the proper research/method/professional ?
Best regards